Patient advisory board
Fimea launched the operation of a patient advisory board in spring 2020.
The advisory board’s operation is aimed at:
- to incorporate patient perspectives in official duties and to make it possible to take them into account in Fimea’s operation,
- to establish direct communication between Fimea and patient and disability organisations and to strength the flow of information between them,
- to increase the transparency of regulatory operations and awareness of them, and
- to increase expert communication and reliable information
The matters discussed by the patient advisory board in its meetings are related to Fimea’s operations and tasks. The topics of the meetings are planned jointly according to the wishes and needs of Fimea’s officials and the members of the advisory board.
Term of the patient advisory board
The patient advisory board serves a term of two years at a time. The call for applications to the advisory board is opened every two years in September. The intention is to change approximately one third of the board members at two-year intervals. This way new organisations will also have the opportunity to participate in the work of the advisory board.
The following patient and disability organisations were approved for the term 2024–2025:
- ADHD-liitto ry (ADHD Association in Finland)
- Allergia- Iho- ja Astmaliitto ry (The Finnish Allergy, Skin and Asthma Federation)
- Gynekologinen potilasjärjestö Korento ry (Patient association for gynaecological conditions)
- HARSO ry (The Finnish Alliance of Rare Diseases and Disabilities Organizations)
- IBD ja muut suolistosairaudet ry (IBD and Other Intestinal Diseases Association)
- Kilpirauhasliitto ry (The Finnish Thyroid Association)
- Lihastautiliitto ry (The Finnish Neuromuscular Disorders Association)
- SOSTE Suomen sosiaali ja terveys ry (SOSTE Finnish Federation for Social Affairs and Health)
- Rintasyöpäyhdistys - Europa Donna Finland ry (Breast Cancer Association - Europa Donna Finland)
- Suomen Diabetesliitto ry (The Finnish Diabetes Association)
- Suomen Kipu ry (The Finnish Pain Association)
- Suomen Luustoliitto ry (Finnish Osteoporosis Association)
- Suomen Migreeniyhdistys ry (Migraine Finland)
- Suomen Sydänliitto ry (Finnish Heart Association)
- Suomen Syöpäpotilaat ry (Association of Cancer Patients in Finland
Read more:
The action plan of Fimea’s patient advisory board for the term 2024-2025 (pdf, in Finnish)
Further information:
Kiviranta Päivi, Development Specialist, tel. +358 29 522 3522